About
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our Story
creating a softer place to Land
Learning about neurofibromatosis while waiting for a diagnosis can be a harrowing experience. Our goal is to provide an honest representation of how NF impacts patients and their supporters, both good and bad, for those who are beginning and evolving through their journey of diagnosis and treatment.
When our pediatrician first noticed my baby's cafe au lait spots at 26 days old, she said, "He may have a genetic condition so you should see a neurologist. Don't Google it."
This advice was impossible to follow, but it did help prepare me for what I would see--a barrage of images and accounts of the most severe NF presentations. It's a common story among NF parents who stumble into a terrifying new reality that intensifies with every scroll and click.
But hidden amid the heart-wrenching photos and devastating stories is the fact that the vast majority of NF patients lead happy, healthy lives.
There are brilliant scientists and powerful donors working to find a cure.
We see many reasons to hope and we'd like to share them with you.
About neurofibromatosis
Neurofibromatosis (NF) encompasses three distinct genetic disorders, all arising from mutations in the NF1 gene.
The NF1 gene.
Describe the item or answer the question so that site visitors who are interested get more information. You can emphasize this text with bullets, italics or bold, and add links.ButtonThe 3 NF conditions.
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We were
Made
for
freedom
our core values
faith. community.
Path Church is a community of diverse people from all walks of life, who have decided to give Jesus the ultimate power and trust. This means we believe He will help us do what we can’t -forgive, transform, give back and nurture. We invite you to explore any of our recorded services (or stop by to see in person) to see Path's values and approach for yourself.
our core values
LIVING LIFE INDIVIDUALLY,
TOGETHER
Men and women everywhere are born to live together, not alone. As a closed-knit church, we believe we can all walk along our individual paths, together. With a strong shared sense of His love, each member of the Path community can find a way to live a wholesome life of faith while sharing the struggles, happy moments and wishes with other members of the church.
Lone
Wolves
die
There
is
no
plan
b
our core values
make our world
better
At Path church we see it as an imperative to consider the environment He has created for us. It is our duty to keep Earth clean and sustainable for the next generations. To make this happen, we take actions in addition to prayer. Find our how you can join the Better Earth group of the church, and volunteer in parks and beaches in our area.
VISION + MISSION
inform | research | accelerate
Our team
An NF family.
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